We live in a society which has a pre-occupation with death. We spend billions each year trying to cheat it and spend billions more trying to deal with its aftermath. We plan elaborate funerals, often spending more in death than we did in life. Hell, pet funerals are becoming much more common and expensive. A friend’s neighbor spent $10,000.00 on her beloved pet Yorkshire Terrier's "funeral" which included cremation, internment in a pet cemetery and a wake attended by dozens of Yorkie’s “friends” (that’s right, her Yorkie’s name was Yorkie).
For years I have read the obits and have made comments like, "85? Well he/she had a good long life." or noticed where someone died who was younger than me. Often the death was of a good friend or someone I knew over the years causing me to scour my mind for recollections of them. I lost track of the times when I said to myself, "I wish I could have had a chance for one last conversation with them." When my Dad died suddenly in 1982 his last word to me was "Sorry." before he slipped into a coma. I have always wished I had the chance to say he had nothing to be sorry for and how proud I was to have him for a father. I know we have all said this, but my Dad really was the best. After my Dad's passing, I moved home so Mom wouldn't have to sell the house and to help with household expenses.
My Mom died on November 5th after a long battle with dementia. It can be argued that dementia itself cannot cause death, but it certainly is the start of a long, slow path to a painful death.
She was 86 and no doubt people read her obit and said to themselves, "86? Well she had a good long life." Like I said before I've been saying the same about other people for years, but when it hits home it changes your perspective.
Mom was never the same since my Dad passed away or when all her friends slowly passed on one by one until she was the last one left from the group of friends she and Dad had. When she began having mood changes and memory loss starting about 4 years ago her doctor wrote it off as getting old. We knew it had to be some form of Dementia or Alzheimer's but Mom refused to be tested and we watched her get progressively worse.
To say she could drive me nuts would be an understatement. How do you deal with someone asking the same questions over and over or someone who has forgotten friends, their favorite recipes or birthdays (including her own and mine)? How do you deal with someone who goes shopping and buys the same things she bought the week before and that we don't need (she liked dill pickles but we really didn't need 8 jars) and forgot to buy things we did need (toilet paper comes to mind, lol) or someone who forgot what she had made for dinner the night before and makes it once again (I love chicken but not 6 nights in a row)?
My Mom was fiercely independent and would refuse help as she felt she could handle things herself - like shopping, housework, cooking, etc... Being disabled with severe arthritis in both knees limited my mobility, but I would do anything I could to help her but she refused all help and would get extremely pissed if I helped her without asking first (to her this would mean I thought she couldn’t handle things). While her memory loss worsened there were some minor things she would never forget but would expand on to the point of obsession - sort of like making a mountain out of a molehill. For example, we don’t own a car so our neighbors use our garage and workshop for storage. To me it’s not a big deal as we weren’t using it and they helped us quite a bit, but Mom would go on and on about it.
This was not the Mom I knew. These things which happened were not her fault and I wish I could have handled things a bit different but frustration can get to you. I was frustrated with how the disease was robbing her of memories and changing her personality and I was frustrated by the same questions/conversations over and over. I may have sounded mad but should have reacted differently, but like I said, frustration can eat at you and make you react in ways you normally would not. I tried to impress on her that I was not mad at her, but at the situation and I hope she realized this.
It wasn't until the last 9 months when she started asking for my help with shopping or balancing her bankbook. I think she finally realized she was having problems but was too proud to admit it so asking for help was really hard for her.
While she had been progressively getting worse, everything changed virtually overnight in late September. One morning she awoke and had lost all energy and refused to eat as she said she would get sick if she ate. She spent more and more time in bed, became lethargic and was unable to look after her “personal” needs (bathing, washroom, etc…) and we looked at having homecare as it was obvious I could not help her with the personal care she needed. Her doctor was useless as it was always, “Well she is getting old.” and kept saying she will get over it in time. Finally after 3 weeks of no eating and inaction from her doctor, and after discussions with the home care nurse it was obvious Mom was dehydrated so we checked her in to the hospital.
Finally she was getting the treatment she needed but she still refused to eat and we discussed with the doctors and social workers about getting her into a 24/7 care facility. Deep down, however, my brother and I knew that once she entered the hospital she would not be leaving. She kept getting worse and became a shell of the person we all knew and loved, dropping down to about 70 lbs. The doctors said it was only a matter of time as it appeared she had given up the will to live. She was down to skin and bones and needing morphine as she was in constant pain and when she passed away the morning of November 5th we felt relief as she was now in a better place free of pain and back with Dad.
We know Mom would never want a church service so I asked our neighbors if they would mind having a memorial at their house. They said they would be honored and really stepped up to organize a potluck dinner which my Mom would have loved. Over 30 neighbors and relatives, many of whom we hadn’t seen for years, attended. It was a fitting tribute to my Mom who would have been honored by all those who attended. I encouraged everyone to say a few words about not only my Mom, but my Dad as well and I told a story which only my brother and I knew so I might as well share it here:
My parents were married in 1953 and spent their honeymoon on a car trip to Portland, Oregon. On the way there they decided to stop at a bar for a drink or two. The place was packed with people and with the jukebox blaring was noisy as hell too. My Dad had to visit the washroom and after a few minutes my Mom noticed him standing at the washroom door trying to say something to her. She tried responding but it was too noisy. My Dad tried to speak louder and just as he raised his voice the jukebox quit and the entire bar became silent as my Dad yelled, “My damn sister sewed up the front of my shorts and I peed my pants!” The quiet room suddenly filled with laughter and my parents made a hasty retreat.
For the next hour or so, neighbors and relatives opened up with stories of their own and the evening was most enjoyable and gave us all a better understanding of my Mom and Dad and allowed us all to share our grief.
Sorry for going on a bit but I appreciate the chance here to not only vent but to also ask you all some questions on the topic of this post:
1. How do you cope with death – whether it is expected or unexpected?
2. How would you handle someone exhibiting signs of dementia and at what point do you intervene against their wishes?
3. What kind of service would you want when you pass on?
4. How do you want to be remembered?
As I said, my Mom’s passing was not unexpected and we had some time to prepare ourselves, but not everyone has that same opportunity. While I had time to tell my Mom the things I needed to say, I never had the opportunity with my Dad and have some regrets that I didn’t have more time with him.
Knowing now what I do about Dementia, I wish my brother and I had acted sooner to get her tested as there are medications which can slow the progression of the disease. We may have been able to have a few more years with Mom, but if she truly had given up on life, so to speak, would we have had the right to be selfish to keep her around longer to make us feel better?
When I pass on, I can think of no better way to be remembered than the way we honored my Mom. I’m not into church services either as I am not a regular church goer and would not want a priest/pastor, etc… who does not know me to try and speak on my behalf. Nope, I would rather have my friends and relatives sit around, have a few drinks and, hopefully, say lots of good things about me, lol. I have left enough funds in my will for one hell of a wake (and enough Carolan’s for Sally).
Once we sell the house (we need to repay a reverse mortgage my Mom took out 20 years ago) I will be left with a good size inheritance and I can think of no better way to remember my parents than to establish a bursary/scholarship in their name at my old high school for a student who wants to attend nursing/medical school. Up here in Canada we have a great need for more nurses and doctors. It will be for $3,000.00 and I plan on presenting it every year. I will deposit $35,000.00 into a high interest account (hopefully say 3.5% a year or so) then with compound interest this $35,000.00 should provide enough bursaries for over 15 years. $3,000.00 may not seem like a lot of money when you look at how much it costs for a college education but it should provide a good starting point for any student.
As I have learned, life is short and we never know when our time will come. We all have regrets and say, “If only I had done….” In the future I will say the things I need to say to people and not hold them in for a better time as that time may never come. So let’s start - Sally and Laura, I may not have said it enough but thank you for being my friends, your friendship is invaluable to me.
OK, enough rambling for now… it’s time to make dinner, lol.


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