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Thread: What is making you happy right now

  1. #6181
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    In case there might be any doubt; I am happy that your son gets top notch medical care. I'm sorry he actually needs it.

    Having that out of the way; how do you estimate the chances of getting anything remotely like the care your son gets of a child with a similar condition, but with parents significantly further down the socioeconomic ladder? Is this really just about where you live?
    Congratulations America

  2. #6182
    tbf he lives in a very weird place even by the standards of his weird city
    “Humanity's greatest advances are not in its discoveries, but in how those discoveries are applied to reduce inequity.”
    — Bill Gates

  3. #6183
    Quote Originally Posted by Hazir View Post
    Having that out of the way; how do you estimate the chances of getting anything remotely like the care your son gets of a child with a similar condition, but with parents significantly further down the socioeconomic ladder? Is this really just about where you live?
    I think this is a great question! It's definitely both. So it's 100% true that a reasonably affluent person (by which I mean having thousands of dollars of disposable income to spend on healthcare + decent insurance) in many other places in the US (and elsewhere) would not be able to get the same kind of care that my son has received. Obviously location matters - the sheer density of clinician researchers and medical research in my region is just hard to replicate outside of a limited number of large cities, so it would at a minimum take much longer to arrive at a diagnosis and to find an appropriate treatment.

    But it's also not just location, of course. There aren't any fundamental access issues with the providers we have used - all of our specialists have been hospitalists in the large hospital systems used across socioeconomic strata here in Massachusetts (i.e. no private practice specialists with crazy waitlists you need $$ or pull to get access to). So in that respect, there's no unique socioeconomic filter that would have given us a better outcome. However, there are two big factors that gave us a big lift.

    The first is our ability to pay for the various diagnostic procedures. Even with pretty good insurance, the various scopes, office visits, etc. have cost of thousands of dollars out of pocket. Since poorer people either have crappy or no insurance, and little spare cash to spend, they would likely have had to be more thoughtful about which diagnostic procedures they agreed to, and might have opted for conservative approaches (e.g. diet elimination without diagnosis). Perfect example: our first major diagnostic procedure was a 'triple scope', which involved a truly ridiculous number of specialists in the room at the same time. The benefit of such a procedure is it allows you to use a single procedure/anesthesia to answer lots of questions about nonspecific symptoms, and it quickly eliminated many dead ends and allowed us to focus on the putative diagnosis. But it ain't cheap, as you can imagine. It wasn't an access issue - this was standard of care at the major hospital we were using - but it most definitely could have been a price issue. Furthermore, the therapy we will be trying is going to be quite expensive as well, once it's full on the market (list price in the tens of thousands per year, indefinitely). But with good insurance, the out of pocket will be manageable... without insurance, it would be challenging even for a reasonably well-off family like ours.

    The second and less obvious factor would be how seriously providers would have taken our concerns. We came with a super nonspecific complaint from a two year old who was not able to clearly articulate his symptoms. Every provider we worked with took our reported history at face value and treated it as a very serious issue to be addressed - even though we didn't (yet) have evidence of inadequate weight gain/etc. that can be independently verified. There is ample evidence that physicians do not always treat every patient the same way (especially stratified by race and gender). It is easy to imagine that someone coming from a different background would not have had their complaints taken as seriously by the healthcare system, which would have delayed diagnosis and treatment, with possible deleterious effects. We present as very 'believable' to physicians - my wife and I dress and talk like professionals, we both are quite familiar with medical terminology and technologies, and present detailed histories with appropriate evidence and caveats. Our complaints are no more or less serious than a similar family coming in with a different background, but others might get a more skeptical hearing.

    So, yes - I am fortunate that cost has not limited the speed or type of care we have been receiving, and very fortunate that our concerns are treated as 'real' by the medical establishment. But even beyond those advantages, we probably wouldn't have had as rapid or fortuitous of an experience in most other regions of the US.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  4. #6184
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    Thanks for the very elaborate answer.
    Congratulations America

  5. #6185
    By now you should know, if there's one thing I'm good at it's elaborate answers.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  6. #6186
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    If this goes on for much longer this belongs in messing with your groove topic ; but so far here is just fine. After coming back from my vacation this is the second day I can't work.

    A system central to the work I do is having extreme capacity issues. And it pretty much is impossible to do any secundary work because that same system holds the key to identifying relevant documents. I'm literally reduced to Netflix and chill until the tech people do their magic.

    Series finale of Better Call Saul it is then.
    Last edited by Hazir; 08-16-2022 at 09:04 AM.
    Congratulations America

  7. #6187
    Someone needs to google the meaning of "Netflix and chill".
    Hope is the denial of reality

  8. #6188
    Senior Member Flixy's Avatar
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    Quote Originally Posted by Loki View Post
    Someone needs to google the meaning of "Netflix and chill".
    Maybe Hazir is doing exactly that. Gotta do something to kill the time
    Keep on keepin' the beat alive!

  9. #6189
    That would be hard to explain to the bosses.
    Hope is the denial of reality

  10. #6190
    Quote Originally Posted by Loki View Post
    That would be hard to explain to the bosses.
    It's europe bro
    “Humanity's greatest advances are not in its discoveries, but in how those discoveries are applied to reduce inequity.”
    — Bill Gates

  11. #6191
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    Quote Originally Posted by Loki View Post
    Someone needs to google the meaning of "Netflix and chill".
    I know the meaning.

    Also, I work from home.
    Congratulations America

  12. #6192
    I wanted an off-grid computer at work so someone just gave me a new dell with a new i9 and rtx a5000 in it.
    I have no idea what to use that gpu for but it is shiny for a laptop.

  13. #6193
    Quote Originally Posted by rille View Post
    I wanted an off-grid computer at work so someone just gave me a new dell with a new i9 and rtx a5000 in it.
    I have no idea what to use that gpu for but it is shiny for a laptop.
    Off-grid?!
    “Humanity's greatest advances are not in its discoveries, but in how those discoveries are applied to reduce inequity.”
    — Bill Gates

  14. #6194
    Quote Originally Posted by Aimless View Post
    Off-grid?!
    Without company bloat etc.

  15. #6195
    In case anyone thought you'd get respect if you get a PhD ... Last night my son was bawling and demanding that a doctor give him his injection. When my wife suggested that I can do it since I'm a doctor, he immediately responded (in between sobs): "He's not a real doctor, he's a PRETEND doctor!"

    Ouch.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  16. #6196
    Someone's voting Republican at the school mock election.
    Hope is the denial of reality

  17. #6197
    I didn't ask what he thought about Dr. Biden.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  18. #6198
    Let's just hope he doesn't have a schoolmate named Brandon.
    Hope is the denial of reality

  19. #6199
    The fact that I can play CounterStrike through a browser is a delight.

    https://play-cs.com/

  20. #6200
    Quote Originally Posted by wiggin View Post
    In case anyone thought you'd get respect if you get a PhD ... Last night my son was bawling and demanding that a doctor give him his injection. When my wife suggested that I can do it since I'm a doctor, he immediately responded (in between sobs): "He's not a real doctor, he's a PRETEND doctor!"

    Ouch.
    Your Erdös number is not the figure itself, it is the trappings it awards you with.

    Which, as you point out, are shit all
    In the future, the Berlin wall will be a mile high, and made of steel. You too will be made to crawl, to lick children's blood from jackboots. There will be no creativity, only productivity. Instead of love there will be fear and distrust, instead of surrender there will be submission. Contact will be replaced with isolation, and joy with shame. Hope will cease to exist as a concept. The Earth will be covered with steel and concrete. There will be an electronic policeman in every head. Your children will be born in chains, live only to serve, and die in anguish and ignorance.
    The universe we observe has precisely the properties we should expect if there is, at bottom, no design, no purpose, no evil, no good, nothing but blind, pitiless indifference.

  21. #6201
    The harshness of being a newly appointed manager, is starting to wear off, and things are finally starting to align a bit more.

    6 months or so I ago, I was called to the office by the store manager, asked to take a senior management position of having responsibility of 24 employees. The first 6 months I felt as though I have been tolerated due to my knowledge and expertise within our branch of retail, but simultaneously felt that nobody has been inspired by me, nor really had a heartfelt connection. I felt as if I were held accountable for every mistake I made, while all the time and effort spent extra to make up for it, felt invisible to most. It hit hard when one employee told me straight up that he felt like I did nothing, after having worked 12+ hour shifts for nearly a month straight. All in all, I just felt incredibly unaccomplished.

    Finally today, I for the first time felt like things just started to click. Conversations have been going well, results have blossomed despite everything going on, and I am allowing myself to be more a human version of a leader. I feel calm and balanced, whereas a month ago I considered quitting with no financial back-up due to high stress.

    Also happy this place is still alive!
    Last edited by Kazuha Vinland; 12-28-2022 at 11:01 PM.
    Tomorrow is like an empty canvas that extends endlessly, what should I sketch on it?

  22. #6202
    My daughter just independently came up with the idea of carbon capture and storage while daydreaming about how to fix carbon emissions. Now, granted, she was trying to think about how to eliminate CO2 emissions from human respiration by advent of breathing out into a paper bag and 'somehow burying it or something?'. But I'm not sure if anyone else has a much better idea of how to do CCS, so I'm giving her full marks.

    Pretty solid for a seven year old, I was legit impressed and tried to figure out where she'd heard of the idea. As far as I can tell, she just thought it up.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  23. #6203
    Survived the family vacation through the Carribean. Finishing it off with a day at the Kennedy Space Center.
    "In a field where an overlooked bug could cost millions, you want people who will speak their minds, even if they’re sometimes obnoxious about it."

  24. #6204
    Picking up our daughter from daycare. As we approach the gate, from the dark playground, a (tiny) shadowy figure—perched atop a mound of snow twice her height—yells at us,

    "UNA MATTINA!! MI SONO ALZATO!
    O BELLA CIAO BELLA CIAO BELLA CIAO CIAO CIAO!!
    UNA MATTINA!! MI SONO ALZATO!
    E HO TROVATO L'INVASOR!!!

    O PARTIGIANO!! PORTAMI VIA!
    O BELLA CIAO BELLA CIAO BELLA CIAO CIAO CIAO!!
    O PARTIGIANO!! PORTAMI VIA!
    CHÉ MI SENTO DI MORIR!!!"

    Where she leads, we will follow
    “Humanity's greatest advances are not in its discoveries, but in how those discoveries are applied to reduce inequity.”
    — Bill Gates

  25. #6205
    My four year old picked out some early reader phonics books at the library and is supposed to bring them to show and tell today to tell the class about his book. It was a set of Lego Batman stories (very simple) - he's a big fan of Batman in theory, though has no idea of the underlying story.

    I asked him what he was going to tell the class, and he said that he was going to say Batman is the biggest meanie in the whole world. Surprised, I asked him to elaborate. His answer? "He always uses his hands, not his words! Super mean."

    I think we're doing okay with him, so far.
    "When I meet God, I am going to ask him two questions: Why relativity? And why turbulence? I really believe he will have an answer for the first." - Werner Heisenberg (maybe)

  26. #6206
    Kids that age are so damn cute! My oldest son used to wear a pink towel as a cape, with a potato chip clip at his neck, to pretend he was Superman. In public. Thanks for triggering good memories, wiggin

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